Characterizing the Biomedical Data-Sharing Landscape

Angela G. Villanueva; Robert Cook-Deegan; Barbara A. Koenig; Patricia A. Deverka; Erika Versalovic; Amy L. McGuire; Mary A. Majumder

doi:10.1177/1073110519840481

Characterizing the Biomedical Data-Sharing Landscape

Angela G. Villanueva
, Robert Cook-Deegan
, Barbara A. Koenig
, Patricia A. Deverka
, Erika Versalovic
, Amy L. McGuire
, Mary A. Majumder

Research output: Contribution to journal › Article › peer-review

24 Scopus citations

Abstract

Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.

Original language	English (US)
Pages (from-to)	21-30
Number of pages	10
Journal	Journal of Law, Medicine and Ethics
Volume	47
Issue number	1
DOIs	https://doi.org/10.1177/1073110519840481
State	Published - Mar 1 2019
Externally published	Yes

ASJC Scopus subject areas

General Medicine

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10.1177/1073110519840481

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AU - Versalovic, Erika

AU - McGuire, Amy L.

AU - Majumder, Mary A.

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AB - Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.

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Characterizing the Biomedical Data-Sharing Landscape

Abstract

ASJC Scopus subject areas

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